I have called for the Scottish Government to fully implement their NICE Guideline on Myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) after meeting campaigners for ME awareness at the Scottish Parliament.
The campaigners from ME Action were representing their #MILLIONSMISSING campaign, calling for more ME specialists in the NHS to ensure people are being diagnosed appropriately and quickly and raising concerns over similarities between ME and Long Covid.
I was delighted to attend ME Action’s event at the Scottish Parliament to meet with campaigners and hear first-hand the experiences affecting people and their families.
It was particularly interesting to hear comparisons between ME and Long Covid, displaying many of the same symptoms with campaigners believing Long Covid may be ME by another name.
Like Long Covid, up to 80% of cases of ME and Chronic Fatigue Syndrome are initiated by infection – it is crucial that the Scottish Government properly implements and funds the October 2021 NICE guideline on ME/CFS to ensure improved service and looks further into the connection between Long Covid and ME/CFS.
